Retinitis pigmentosa (RP) is a group of eye disorders caused by variations in more than 70 genes that affect the retina and are passed down from parent to child. RP makes cells in the retina break down over time, causing progressive vision loss. Onset of RP can occur at childhood or adulthood, and the first sign is usually loss of night vision. Retinitis pigmentosa is an inherited retinal disease (IRD), which is a rare, genetic disorder that can cause severe vision loss and blindness.

ICD and SNOMED codes alone do not provide an accurate way to identify patients with RP. Data from electronic health records (EHRs), such as clinical notes and ophthalmic images, provide a more accurate way to analyze this patient population.

Qdata Retinitis Pigmentosa is a curated, high-quality dataset from the American Academy of Ophthalmology IRIS® Registry (Intelligent Research in Sight) that provides an accurate way to mine EHR data to analyze patients with this inherited retinal disease, as well as their associated clinical outcomes through clinical notes and images.

Qdata Retinitis Pigmentosa by Verana Health is a research-ready, fit-for-purpose real-world data module that can be used to analyze patients with RP and track their outcomes. These outcomes are derived from unstructured and semi structured fields in EHRs and include visual acuity and central subfield thickness.