Verana Health’s platform enables clinicians and industry to work together towards a shared goal of accelerating the availability of better treatments and cures for patients. Verana’s insights come from three of the largest clinical databases in medicine, the American Academy of Ophthalmology’s IRIS® Registry (Intelligent Research in Sight), the American Academy of Neurology’s Axon Registry® and the American Urological Association (AUA) Quality (AQUA) Registry. Our partnerships with these organizations enable us to learn from the collective healthcare journey of millions of patients to empower clinicians, accelerate research, and enhance patient care, including for patients with conditions such as macular degeneration, glaucoma, Alzheimer’s Disease and urologic conditions where limited treatments or cures exist.
As part of our work, Verana is entrusted with confidential information from clinicians and the patients that they serve. Verana has strict policies regarding the protection of this information that meets or exceeds all legal requirements to safeguard data and protect patients. To learn more about these requirements and guidelines, please visit HHS.gov’s Health Information Privacy page.
About Verana Health
Verana Health is a data curation and analytics partner of the American Academy of Ophthalmology (AAO), the world’s largest association of eye clinicians and surgeons, the American Academy of Neurology (AAN), the world’s largest association of neurologists, and the American Urological Association (AUA), the world’s largest association of urologists. US members of each organization can submit patient data to each organization’s quality improvement registry. Registries are centralized data repositories that contain clinician-reported clinical data regarding patient health status and trends over time. Registries and clinicians use this information to identify clinical best practices, direct clinician education and stimulate research. Verana operates as a business associate that assists these registries by improving data quality and de-identifying the data. The de-identified data is used to create the Verana Health data platform, which uses only de-identified data to perform research and analytics.
Patient and Clinician Data Privacy
Ophthalmology, neurology, and urology practices are required by law to maintain the privacy of your health information and provide you with a description of their privacy practices. By receiving treatment, you’re permitting your practice to use and disclose information about you in ways that are allowed by federal and state privacy laws, including HIPAA. These laws permit the use of patient data for “health care operations,” which includes quality assessment activities to improve patient care and the creation of de-identified data. Clinician information may also be used for these purposes, as authorized by the practices participating in the registries.
How Verana Health Uses Confidential Information
Verana operates as a business associate that assists the registries in providing quality improvement services to the practices and de-identifying the data. The de-identified data is used to create the Verana Health data platform, which uses only de-identified data to perform research and analytics
Commitment to De-identification of Patient and Clinician Data
Verana employs techniques to de-identify patient data. An independent team of qualified personnel at Verana Health de-identifies all registry data into high-quality, HIPAA-compliant datasets. An established firewall is also in place to ensure data is protected. De-identified data is verified by a third-party statistician as being de-identified, in order to protect the privacy of all patients. Additionally, third parties do not have access to clinician names or other data that identifies individual clinicians.
Inclusion in the Verana Health Data Platform
If you are a patient with an ophthalmic, neurologic, or urologic condition that has been treated in the past several years by a member of the AAO, AAN, or AUA in the United States, and your doctor participates in one of these registries, it is possible that your de-identified healthcare information is included in the Verana Health data platform. To verify, please request an accounting of disclosures from your doctor or simply ask if your doctor submits data to these registries.
Patients who would like to opt-out of these registries should let their provider know in writing. Your provider will notify their registry to have your data removed going forward.
Commitment to Patient Privacy
Safeguarding patient privacy remains Verana’s number one priority. Verana is committed to compliant, secure, and responsible data governance, including compliance with the privacy and security requirements established by its partners, applicable law, and industry standards for data security. Additionally, the data in the Verana Health data platform is verified by a third-party statistician as being de-identified, in order to further protect the privacy of all patients.
Our Work with Clinicians
Clinicians voluntarily submit patient data to registries for purposes of quality improvement and in some cases, meeting mandatory federal reporting requirements. Verana is a business associate of these Registries and part of the clinician member’s healthcare operations.
Our Work with Life Science Companies
Once the registry data has been de-identified and can no longer be traced back to any individual patient, Verana curates and analyzes de-identified, aggregate data in the Verana Health data platform to provide insights to life science companies and research institutions with the goal of advancing research and discovery. These life science companies are also under strict requirements expressly prohibiting any attempts or efforts to re-identify any of the patient data provided. In compliance with HIPAA, personal protected health information (PHI) cannot, and will not, be sold.
Partnerships with Clinical Registries
Presently, Verana is partnered with the American Academy of Ophthalmology’s IRIS Registry, the American Academy of Neurology’s Axon Registry, and the American Urological Association’s AQUA Registry. Additional registries may be added in the future.
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