About Qdata
Qdata® by Verana Health are research ready, fit-for-purpose data modules designed to confidently drive business insights and inform research outcomes. Qdata spans ophthalmology, neurology, and urology to help unlock quality insights across the entire drug and device development cycle.
Exclusive Insights into the SMA Population
Only found here from the American Academy of Neurology Axon Registry®
Standardized, Clinically Validated SMA-specific Data
Key variables have been curated and validated from clinician notes
Real-world View of the SMA Patient Journey
Understand SMA disease progression and treatment from EHR and claims
By the Numbers
Total de-identified patients with SMA*
Average length of follow-up for total patients
*1+ clinical note in the Axon Registry and 1+ claim in the Komodo Health Database. Data current to April 2023.
Meet with a Qdata Expert or Request a Data Count
Key Variables in Qdata SMA
Curated variables extracted from EHR data to be utilized based on your research needs.
SMA Subtype
SMN2 Copy Number
Respiratory Status
Ambulatory Status
Motor Strength Score
Unstructured Data Enables Deeper Understanding
Verana Health applies clinician-informed algorithms to unstructured EHR data at scale to help extract key information SMA subtype, SMN2 copy number, ambulatory status and more.
This can give life sciences companies unprecedented insights into the journey of patients with SMA or help identify patients for their next clinical trial.
0%
of Medical Data Remains Unstructured
Read More About Qdata SMA
Check out research, blogs and news related to our work in SMA.
Talk to a Qdata Expert
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